SMS resources
Long-term conditions have been described as "the healthcare challenge of the 21st century" by the World Health Organisation. This is due to the increasing burden of disease and mortality attributable to long-term conditions not only in developed countries, but increasingly in developing countries as well. Extensive research and effort is going into improving the care of people with long-term conditions and here are some resources and international centres focusing on this area.
Self-management Support for People with Long-term Conditions
This paper was developed as the result of three sector workshops in 2015 to share best practice
and innovation for the primary and community health sectors. It includes definitions of key
terms related to LTCs, as well as links to examples of current work in New Zealand.
Ministry of Health NZ
Flinders Program
The Flinders Program is an internationally recognised approach
for managing chronic conditions within primary care.
The philosophy and tools of the program enable clinicians and health care providers to work
collaboratively and undertake a structured process with their clients
to develop a care plan for the management of their chronic conditions.
Flinders Program Australia
Navigating Self Management
This is an excellent guide to the area of self management and chronic care with a large range of resources, tools and information to support organisations with planning, implementation and evaluation of clinical programmes. Produced by the Whitehorse Division of General Practice in Australia.
Whitehorse Division of General Practice
CEO Checklist
Participants in an Institute of Medicine Roundtable on Value & Science-Driven Health Care have developed a checklist of critical components for organisations interested in delivering high value health care. The following ten items are discussed with brief examples in the document.
National Academy of Medicine
Partnering in Self Management Support: A Toolkit for Clinicians
"The New Health Partnerships initiative is a national program of the Robert Wood Johnson Foundation at the Institute for Healthcare Improvement funded to develop and test efficient approaches to empower patients and families to manage their chronic conditions. The program also engages patients and families as advisors to improve the design and delivery of health care services." May 2009
Institute for Healthcare Improvement
Ottawa Patient Decision Aids
Developed by the Ottawa Health Research Institute, affiliated with The Ottawa Hospital and The University of Ottawa. The Patient Decision Aids research program was developed to help patients and their health practitioners make "tough" healthcare decisions. "Tough" healthcare decisions may have many options, uncertain outcomes or benefits and harms that people value differently.
Ottawa Hospital Research Institute
Integrating Chronic Care and Business Strategies in the Safety Net
Prepared by Group Health’s MacColl Institute for Healthcare Innovation, in partnership with RAND and the California Health Care Safety Net Institute. Agency for Healthcare Research and Quality. September 2008.
Whitehorse Division of General Practice
Health Disparities Collaboratives Training Manual for Improving Chronic Conditions
Excellent overview manual as well as disease specific manuals for asthma, diabetes and depression.
Need to log in (free to register) to Institute of Healthcare Improvement website to download zip file with all 4 manuals.
Institute for Healthcare Improvement
Supporting Self-management
The guide is written for people who support those living with long term conditions, or who help people avoid these conditions using person- community-centered approaches. This group may include health, care and wellbeing professionals, people in voluntary or community groups, peer
supporters, carers, patient leaders and people living with long-term conditions themselves.
Realising the Value UK
